David had a good and a hard day today. He started physical therapy and occupational therapy. They got him up in the chair - the first time he was so weak he couldn't hold his head up. He did better the second time. They also stood him up briefly, although he needed support to stand.
He was able to breathe on his own, with just a little bit of oxygen, for most of the day - which is amazing. But they put him back on the bi-pap mask (that he hates) tonight because he was getting tired. He is having a lot of secretions and is needing suctioning because he can't cough them up yet.
Lydia mentioned her day at school and then left to get some coffee. When she came back, he asked her about it. He also asked to watch a little TV and gave input on what he wanted to watch.
He seems to be having a really hard time sleeping. He doesn't sleep much during the day (and it seems like it would be better if he did) and he was having a lot of trouble sleeping tonight as well, even though he appeared just exhausted.
Please pray that he is able to get the rest that he needs. And also that he doesn't get too discouraged. We are definately seeing him make progress, but that progress is probably a lot harder for him to recognize.
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Thanks for the update and I am not too surprized about not like the mask too much. I hated it so much I had them hook it directly into my Trach tube and the had to jeri rig a contraption to make it work and it is a lot more comfortable.
ReplyDeleteMy Prayers go with all of you...Jeff